Thanks to one of our generous donors, The Jerome Lejeune Foundation is proud to announce that we have partnered with Rick Guidotti and his organization, Positive Exposure to fund the production of a video on Down syndrome as part of their "Faces Redefining the Art of Medical Education," or FRAME project.
FRAME videos are intended to give future genetic counselors, nurses and physicians a more robust understanding of rare genetic conditions, while modeling an attitude of respect for the humanity of patients. This video on Down syndrome would also be a perfect resource to share with families who have received a prenatal diagnosis of Down syndrome.
Rick is an award-winning former New York fashion photographer whose life was changed when he saw a young woman with albinism waiting at a bus stop in New York Cithy. He was struck by how beautiful she was, and when he tried to learn more about her genetic condition what he found was startling and upsetting. The photographs he saw showed the disease or diagnosis at the expense of the person's humanity.
Rick stopped working for the fashion industry and founded Positive Exposure to empower people living with genetic differences, and to educate the world around them. Rick has used his incredible artistry to create a world of beauty to transform public perceptions of people living with genetic, physical and behavioral differences.
A partnership between Positive Exposure and the Jerome Lejeune Foundation is a perfect match. Both organizations are committed to putting the human person before their disability while working to improve their acceptance and the service they receive from the medical community.
We hope you will enjoy this video and share it with your friends.
The Jerome Lejeune Foundation (France and the U.S.) was founded in 1996 to carry on the work of the legendary geneticist, Jerome Lejeune. Through its mission of research, care, and advocacy, the Jerome Lejeune Foundation serves those with Down syndrome and other genetic intellectual disabilities in a spirit of profound respect for their inherent human dignity, and that of all human persons.