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Pioneering innovative therapies to improve the lives of those with genetic intellectual disabilities

The Jerome Lejeune Foundation USA

The mission of the Jerome Lejeune Foundation USA is to provide research, care, and advocacy for people with genetic intellectual disabilities. This is achieved by conducting, promoting, and funding therapeutically oriented research; by assisting in the development of healthcare services; and by serving as an advocate in a spirit of respect for the dignity of all human persons. Created in 1996 in Paris and in 2012 in the United States, the Jerome Lejeune Foundation is registered with the Internal Revenue Service as a 501(c)(3) nonprofit corporation.

While many people remember Jerome Lejeune for his discovery of the genetic cause of Down syndrome, or trisomy 21, few know that he also identified trisomies on chromosomes 8 and 9, described 18q- syndrome, and discovered that cri du chat (cry of the cat) syndrome is caused by a missing segment of chromosome 5. He is appropriately called the "Father of Modern Genetics." The Jerome Lejeune Foundation is an international foundation with offices in France and the U.S. It is the world's largest private funder of research into genetic intellectual disabilities.

Articles of Interest

Jerome Lejeune Foundation Releases Video in Honor of Father's Day

As a special tribute to fathers and their children living with Down syndrome, the Jerome Lejeune Foundation will launch a video this week in honor of Father’s Day on June 21st called “My Dear Dad:" A heartwarming glance into moments shared by a father and his very special son.

Jerome Lejeune Foundation USA Statement on the Use of Human Biological Material in Medical Research

With the release of the second video by the Center for Medical Progress containing allegations that Planned Parenthood is selling fetal tissue derived from abortions at their fa